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Lactose-intolerance not dangerous!!! Options
Allana
Posted: Thursday, April 07, 2016 8:35:55 AM

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Prognosis
Lactose intolerance is easy to manage. People of all ages however, especially children, have to replace the calcium lost by cutting back on milk products by taking supplements and eating calcium-rich foods, such as broccoli, kale, canned salmon with bones, calcium-fortified foods and tofu. Many people who suffer with lactose intolerance will be able to continue eating some milk products. The condition is not considered dangerous.

I have copied the above text from the article on lactose-intolerance in the medical dictionary; and wish to take issue with the last sentence.
Lactose-intolerance is not dangerous until you are ill, when you will find that every tablet you are offered contains lactose. To make matters worse, many doctors seems to regard lactose-intolerance as a joke.
I have been struggling with nausea so bad that I cannot eat or drink, even when the nausea does not turn to outright vomiting. This means that both dehydration and malnutrition are very real risks for me.
I am also so bloated with wind that eating is not always an option when I not nauseaous.
Then add in the constant diarrhoea with its concomitant fluid loss and very real risk of dehydration. Not Dangerous! I should coco.

AllanaBrick wall Brick wall Brick wall Brick wall

Don't be afraid to be wrong. You learn more. (Me)
Drag0nspeaker
Posted: Thursday, April 07, 2016 9:11:54 AM

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Yes - there are 'shades' or 'grades' of everything.

The lactose intolerance of some people is probably more correctly labelled 'lactose sensitivity' and produces a bit of lethargy, bloated feeling and a few other discomforts.

That is the mild version. It's not dangerous and you don't necessarily have to avoid all dairy products.

I suppose it's the same as 'accidentally cutting yourself is not dangerous'.
If you cut your finger you can put a plaster on it. If you cut an artery, the cut won't kill you, but the loss of blood might!


Wyrd bið ful aræd - bull!
Allana
Posted: Thursday, April 07, 2016 3:09:05 PM

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Location: Saint Albans, England, United Kingdom
Drag0nspeaker wrote:
Yes - there are 'shades' or 'grades' of everything.

The lactose intolerance of some people is probably more correctly labelled 'lactose sensitivity' and produces a bit of lethargy, bloated feeling and a few other discomforts.

That is the mild version. It's not dangerous and you don't necessarily have to avoid all dairy products.

I suppose it's the same as 'accidentally cutting yourself is not dangerous'.
If you cut your finger you can put a plaster on it. If you cut an artery, the cut won't kill you, but the loss of blood might!


A very good point, Drag0nspeaker, and I can occasionally have cheese or butter, in modest amounts (I did so tonight), But it is entirely another matter when doctors who are supposedly trying to make you better are actually making you worse. I think their Hippocratic Oath included the phrase 'first do no harm'. has it been left out?

You can probably tell, I am more than a little distressed about the subject.

Allana

Don't be afraid to be wrong. You learn more. (Me)
L.Rai
Posted: Thursday, April 07, 2016 5:49:43 PM

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Allana:

I am so sorry for your situation. As someone who has had several people in my family with this issue I do relate. My suggestion is to find another doctor who does understand. It's a lot of work to modify your diet, but it can work.

My nephew is dairy-free, and that includes soy products, and NO wheat or sugar. It's been difficult at times finding foods he can eat but we've managed. It's a limited diet for sure.

I encourage you to seek out a better doctor, one who is more in-tune with your situation. Don't give up.

LRai

"Your life matters more than you will ever know, so live it well"
Allana
Posted: Thursday, April 07, 2016 7:27:47 PM

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Normally it's no problem, I know what I can eat, but these doctors are several specialists at the local hospital - and I'm stuck. At least I can see the end, and I'm going to be slightly less accommodating when I go in shortly for my op. It's the first time it's been an issue since I discovered what was causing my problems.

As with a lot of things, it's educating the people who can do something about it.

Allana

Don't be afraid to be wrong. You learn more. (Me)
Midobecker
Posted: Friday, April 08, 2016 1:47:42 AM

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I suffer from lactose intolerance and even a mild sensitivity to it can't be very unpleasant. Like any other allergy, there
Is nothing mild about it.
Elvandil
Posted: Saturday, April 09, 2016 3:31:50 AM

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Midobecker wrote:
I suffer from lactose intolerance and even a mild sensitivity to it can't be very unpleasant. Like any other allergy, there
Is nothing mild about it.


Lactose intolerance is not an allergy. There is no such thing as a sensitivity to lactose. Since lactose is a sugar, it cannot cause sensitivity like a protein material. Such a sensitivity would be incompatible with life. Intolerance is the result of the lack, or an insufficient level, of a specific enzyme, lactase.

Animals stop producing lactase when they are weaned and will no longer be consuming milk. Some human populations have a longer-lasting version that is not completely activated. Around 90% of Asians are intolerant, and most of European ancestry, though it is more common in southern Europe where dairy products have always been consumed less often. As you go north, the foods become fattier (for producing and maintaining body heat in cold weather), dairy is more often consumed, and the rate of intolerance to lactose falls.

Many people with intolerance suffer needlessly from neuroses developed around their symptoms causing them to have symptoms that are not possibly due to the intolerance. For example, it is not possible for the minute amount of lactose in a pill to cause physical symptoms. Counselling is often of help.

It is understandable that in a world of gunshot wounds and cancer, doctors would be cynical about self-inflicted lactose wounds.










(議思不の界世) pןɹoʍ ǝɥʇ ɟo sɹǝpuoʍ ǝɥʇ ɟo ǝuo sı ǝpoɔıun
Allana
Posted: Saturday, April 09, 2016 7:08:07 AM

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Elvandil wrote:
Midobecker wrote:
I suffer from lactose intolerance and even a mild sensitivity to it can't be very unpleasant. Like any other allergy, there
Is nothing mild about it.


Lactose intolerance is not an allergy. There is no such thing as a sensitivity to lactose. Since lactose is a sugar, it cannot cause sensitivity like a protein material. Such a sensitivity would be incompatible with life. Intolerance is the result of the lack, or an insufficient level, of a specific enzyme, lactase.

Animals stop producing lactase when they are weaned and will no longer be consuming milk. Some human populations have a longer-lasting version that is not completely activated. Around 90% of Asians are intolerant, and most of European ancestry, though it is more common in southern Europe where dairy products have always been consumed less often. As you go north, the foods become fattier (for producing and maintaining body heat in cold weather), dairy is more often consumed, and the rate of intolerance to lactose falls.

Many people with intolerance suffer needlessly from neuroses developed around their symptoms causing them to have symptoms that are not possibly due to the intolerance. For example, it is not possible for the minute amount of lactose in a pill to cause physical symptoms. Counselling is often of help.

It is understandable that in a world of gunshot wounds and cancer, doctors would be cynical about self-inflicted lactose wounds.


Your last passage was extremely offensive to me. I am not neurotic, but I am suffering badly as a result of the TEN tablets my various specialist deem necessary. Two of those ten tablet are prescribed to be taken three times a day, meaning I am taking 14 tablets a day, plus three capsules (wrapped in pork)
It sounds as if you, like too many others, are pontificating about a subject you know nothing about. Please stop!!!!!



Allana

Don't be afraid to be wrong. You learn more. (Me)
Allana
Posted: Saturday, April 09, 2016 11:31:31 AM

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Nearly 4 1/2 hours after I wrote my reply to Elvandil I find that I am still extremely upset over something I see as ignorant bigotry. Does anyone know of any way I can report him for abuse? Or am I just overreacting?

Don't be afraid to be wrong. You learn more. (Me)
Ashwin Joshi
Posted: Saturday, October 22, 2016 12:53:29 PM

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Only trained medical men should suggest, not every Tom, Dick or Harry.

Me Gathering Pebbles at The Seashore.-Aj
Romany
Posted: Saturday, October 22, 2016 4:16:44 PM
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Allana - of course you have every right to feel upset when your feelings have been hurt!

But, for what it's worth: -

Elvandi has also made me feel upset a couple of times, but I honestly don't think it's malice. I have the feeling Elvandi is not a native speaker - which would explain a lot. Many people are taught to speak English i.e. understand what it means; but aren't taught how we USE English. If there's no please or thank you in their language, or if, in their language one just says what one has to say without what English-speakers consider 'the courtesies', then it often does sound very brusque and blunt and, yeah, hurtful.

I may be way off beam here but, even if he is just a very blunt person, I don't think Elvandi even realised he was upsetting you?

Anyway, I've given him the benefit of the doubt. But if you can't, perhaps writing to him on a PM and getting a dialogue going might help the situation?
Hope123
Posted: Sunday, October 23, 2016 11:10:43 AM

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Location: Burlington, Ontario, Canada
Allana, the following sentence is absolutely untrue.

"For example, it is not possible for the minute amount of lactose in a pill to cause physical symptoms. Counselling is often of help."

I have learned to ignore such attitudes about medical issues, sometimes even by doctors. Many times people had told me my problems are "all in my head" or it was "just (emotional) stress". (I was so vindicated when the physical cause of damage to my immune system was finally discovered by a doctor who had actually listened to me and although damage was done, I am a lot better now in the last two or three years after the proper treatments.) When your body is already in a state of upheaval, even tiny amounts can tip the balance. It is all additive.

Yes, lactose intolerance is caused by the lack of the digestive enzyme lactase, where allergy or sensitivity to milk is to the protein casein. But often the symptoms can be the same.

I am not lactose intolerant, but my husband and my friend's husband are. He suffers worse than my husband does.

My husband is able to tolerate small amounts of lactose free milk, which is really just milk with the enzyme lactase added. And he takes digestive enzymes daily with meals. (Disclaimer - I 'm not a doctor and am not suggesting this for you.)

As for pills, I rarely tolerate the drug itself, let alone all the excipients. I get all my meds compounded because it is not just lactose in those pills - they put all kinds of colors, magnesium stearate, and substances derived from petroleum in them. Your body might also be reacting to those. Compounding is expensive but when you are on long term meds like daily thyroid it is so worth it.

I"m glad you are nearly through this crisis. Think about compounding if you ever have to have long term meds. They find a capsule you tolerate and put only the pure drug into it.

Sometimes gut bacteria can make a difference. I am not advocating you try probiotics because I don't know if they would help or make you worse. But they helped both my husband and myself when we started the daily rotation of different kinds of probiotics (some with prebiotics in them.)

Mainstream medicine is better with acute than with chronic medical problems.


A smile is a curve that sets everything straight. Phyllis Diller
Allana
Posted: Sunday, October 23, 2016 12:45:36 PM

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Joined: 1/14/2014
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Location: Saint Albans, England, United Kingdom
Hope, Romany and Ashwin,

Thank you all for your support, I am very grateful for it. Fortunately more people know about lactose intolerance and you get more support from friends, family, colleagues and strangers than used to be the case.
I am also pleased to be able to say that I am now off all prescribed medications, and that I can tolerate small amounts of butter and cheese without worrying if it is lactose free. That's good because we love our Sunday teatime pizza. The Vegetable Feast from one of our big chain supermarkets makes a very good meal when you come in tired, cold and hungry after being out all day.

Thank you again, Allana

Don't be afraid to be wrong. You learn more. (Me)
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